Tuesday, July 14, 2020

What Greater Gift Than Love? Grief and Honoring


I'm so sad. More than I ever expected. I have never professed to be the animal lover of our family. But I have gotten especially close to Scout, our tiger kitty, in the past several years. He's been my cuddler and nudger out of bed. Today, we had to have him put down. He was 16 years old and was the best companion our family could have asked for. He was dropped off at the end of our driveway shortly after his birth with a very bad eye infection. We got him healthy and he's been that up until a couple of years ago. You are going to be so missed, Scouty. Thank you for loving us so much.



As it's been the past two blog posts writing responses to the five prompts from A Chronic Voice's Linkup Party for People with Chronic Illnesses, July 2020 has found me completely changing what I was going to write about because something else is heavy on my heart. 

The past couple of weeks have been ones of loss for my family.  First, my Uncle Bill who was a surrogate father and now our Scout, our silly tiger kitty for the last 16 years. Today, I write from grief that comes from deep within. 


BOTHERING

Every morning as if he could tell time, Scout would hesitantly (at first) nudge his wet nose into my ear, purring like a little motor. The morning routine was started.  I then, rolled over, pulling the covers closer to covering my face, but often leaving one arm out above my head, hand dangling.  He'd get a bit more persistent, butting my hand over and over with the top of his head. 

As of late, that isn't enough to get me fully awake. I roll over again.  So now, he knew he had to get tough. Scout would leave my head and walk over to my nightstand, knocking one item off at a time. First, he would paw my little statue of the Eiffel Tower I had actually bought on Kel and my 25th anniversary trip to Paris. I would hear the metal slide, slide, slide until it plunked to the carpeted floor below. He would then come back to my head, purring into my ear to see if I was going to get up. I had begun to ignore this first attempt, so he would go back to bat the next item to the floor.

Kelley and I feigned being bothered by this morning wake-up, but really it was nice knowing we were needed and not forgotten. 


DEMANDING

It was my 40th birthday, and the kids were outside playing with the balloons from my party. There was a tiny little orange dot at the end of the driveway. The cars zoomed down our street not even noticing that a kitten lay helpless in the gravel. Andrew and Chelsea, 15 and 13, were outside with the neighbor kids when they heard a tiny mew demanding to be heard. They walked nearer to the end of the drive, with the feeling that there was something that needed their help. When they reached the orange fuzzball, they found Scout, eye glued shut from infection.

“He can’t be more than two weeks old,” my husband said as Chelsea cuddled the shivering kitten in her arms.

“Can we keep him?” Andrew asked, the longing in his blue eyes. He knew that we traveled too much to have a dog, but he was hoping that we’d allow them to keep the kitten. Kelley looked over at me with a Well, what do ya think? look, and I shrugged. “I guess…, but you guys are going to have to take care of him.”



NOURISHING

As Scout grew, he became more and more a person. His wacky personality was a favorite of conversation. He got a bit chubby, loving to eat like he did. However, he was also very energetic and athletic. A few times a day, he’d stampede through the house like an orange streak, zipping up the stairs then back, skidding across the kitchen floor. He’d chase his own wily tale as is the snake-like thing eluded his every move.

One of his most incredible feats is when jump to the highest banister in the house, defying death as he hefted his belly up onto the balance beam. Our three-story home had an open banister from the top bedroom level to the living room. Scout made like a drunken, clown on that highwire beam above. It was amazing that he never fell!

In addition, Scout nourished each of my children's hearts. He gave love to each of them. Scout made sure to sleep with each kid equally during the night. He’d cuddle one and then leave to cuddle the next. Chelsea and Andrew each felt that he loved them best of all.

My husband and son brought home Willow,
a black long hair kitty, a few weeks after we
found Scout.  The two have been together ever
since.  Willow is going to need a lot of extra
loving with his cuddle buddy gone.

TOLERATING

I’ve never been a “pet person”. My little sister loved animals much better than humans, she still does. Me, while I may appreciate them now and again, an animal just isn’t going to win my heart. So, for me, having an extra being to care for was just one more responsibility to this full-time working mom’s life. It wasn’t that I didn’t like Scout, it was more that I saw him as a chore on my to-do list.  And so, for many years, I was just tolerating the extra work of scooping out his litterbox, cleaning up the hairballs, or filling his food and water dish.  I didn't really consider myself one of his companions or he mine.

The years went by; Andrew and Chelsea got busy with their adult lives. Little Scout wasn’t on their minds as they moved out to college and the lives beyond our home. Kelley and I filled the food and water dishes. Kelley changed the kitty litter. Scout began to lay on Kelley’s legs every night as he sat watching the TV. 

Little by little that lovey fella became my buddy, too. When I was down and out, laying in bed and feeling lonely due to a Fibro Flare, Scout was always nearby.  His warmth often eased the pain in my gut as this was a favorite place for him to lay.  

In the past year, as I began to get stronger, pour Scout was getting thinner and thinner. We tried special food and medicine, feeding him both morning and night.  But, after we got back from our four-day trip this past week, we knew he couldn't keep going on as he had been.

My aunt and uncle had just come
home to Michigan from quarantining in Arizona, 
so I made this video for him of 
me playing Take Me Home, Country Roads.


TELECOMMUTING

The last time I saw my Uncle Bill was two days before he passed.  He was lying in a hospital bed in a facility that cares for the elderly.  His mind and body were giving away to dementia.  He had stopped eating.  He kept his eyes closed.  

I arranged a Skype call with the activities director.  She brought in her iPad.  Seeing his drawn features and closed eyes, I knew it would be my last time to see him.  I had practiced most of the quarantine on the old wooden ukulele my aunt had given me.  It had been his.  He told us, kids, the story of when he would go and play the old tunes for his mom and the other residents.  Even when his mom didn't know him anymore, he said she recognized the songs.  And so, I played Take Me Home Country Roads by John Denver.  It was hard for me to make it through without crying.  Uncle Bill never looked at me, but he did grab at the iPad and pulled it closer to him.  All I can imagine is that he wanted to let me know he heard.  I told him I loved him.  And then I asked the nurse to make sure to play some upbeat music.  He loved music. 

Grieving and Honoring

And so I grieve.  But, I do know that I loved both my uncle and my Scouty well.  And, I know that they loved me.  This is what it means to live FULLY.  So, I will allow myself to feel the pain of losing them both during these last weeks.  I honor our connection through my memories.  I will continue to practice the ukulele; it sits in the corner of my living room. Uncle Bill, his smile, and music will remain a big piece of my life. I will think of Scout every time I begin to wake, honoring him by living each day with uncompromising love and honesty. 

Those of us who live with chronic illness know what it means to mourn loss.  Those of us who have dared to love, know what the ache when we lose those we've let into our lives. “We bereaved are not alone. We belong to the largest company in all the world--the company of those who have known suffering.”-Helen Keller



The format for this post is thanks to A Chronic Voice link-up. This month, the topics were searching, hoping, traumatizing, honoring, and responding. Each writer takes the given topics and gives them their own spin. Check out these wonderful writers at July 2020 Linkup(scroll past the prompts to find the linked up posts).

Thank you for visiting my blog today. 

 

I am committing to posting once a week by Friday.  

However, as you know, my new normal means that sometimes I

have to listen to my body and am not able to follow through as planned. 

Thank you for your understanding.


Click link Subscribe to Pain FULLY Living Weekly Posts by Email




Friday, July 10, 2020

Finding Your Passion: Nourishing the Soul



This is going to be a short post.  I just got back from a few days camping with wonderful friends on the shore of Lake Michigan.  This has been planned for a year.  Our group, we fondly call the Wander Woman, started the hiking/camping trips July 2018 when we did a week-long trip to South and North Manitou Islands in Lake Michigan.  My friend, Lisa, reminded me that she noticed my constant massaging during that trip.  It wouldn't be until November of that year that I fully understood that there was something very wrong with me. 

Related Post: 

I've been planning and working towards my goal of spending the week with them.  We were to camp in Canada at Lake Superior Provincial Park. However, the border between Canada and the United States is still closed due to COVID-19. So, instead, we chose a closer state park in that we could drive to.  Not everyone who had originally planned to join us could come: some due to family commitments, one due to the death of her mom (non-virus related), some due to not feeling comfortable in doing so. 

We agreed to be logically safe and trusted that our Wander Woman cohort had been safe prior to camping.  The park was not crowded at all and so we had no issues out on the trails, at the camp, using the restrooms, or on the beach.  We chose to wear masks only inside public places (the restrooms). 

Renewed Passion:

I am so energized after these past few days.  Wonderful conversation with my friends that ignited my imagination and funny bone, as well as a few shared tears, met with empathy and love. The photos will be the rest of my description of the joy that is currently bursting in my heart.









I can't thank my friends enough for helping me get back my courage to stay in a tent after a day of hiking and swimming.  I have gotten my courage back to do this more often with my husband. I even talked my daughter into doing a short trip with me soon.  My soul is nourished and my passion blazing again.

Related Posts:

Another Passion Ignited:

My blog is ONE-year old now.  I have learned a lot from doing it.  I've made friends from across the country and the world.  I've learned from other bloggers how to live well with a chronic condition as well as how to blog better.  It, too, ignites my imagination and gives me a purpose that makes me happy.

So, when I found out that I was nominated for two WEGO HEALTH Awards, I felt that this passion was also recognized by those who have watched my blog grow and those who I have hopefully helped in some way.  It's such a wonderful, supportive group that I have found through blogging.  

If you are interested in endorsing me via the link below (just being nominated is really amazing), I humbly thank you.  In my post for the end of this next week, I will be sharing out those who have most impacted my wellness journey, so that you, too, can learn from them (and endorse their nominations for WEGO AWARDS) if you should feel led.




I appreciate this time in my life that I am able to live my life fully (filling it with purpose and passion) alongside good friends and my family despite living with Fibromyalgia. I hope that I can help you find that for yourself as well as you journey through this life. 

Thank you for visiting my blog today. 

 

I am committing to posting once a week on Fridays.  

However, as you know, my new normal means that sometimes 

I have to listen to my body and am not able to follow through as planned. 

Thank you for your understanding.


Click link Subscribe to Pain FULLY Living Weekly Posts by Email



Sunday, July 5, 2020

FULLY Engaged Grandparenting Despite Living with Pain



Being a grandparent is one of the biggest joys that anyone can have in life. Being able to spend time with a new little love can knock your socks off when it’s been years since you last spent extended time with children. However, if you want to spend time with your grandchildren, you need to be the best you can be. Your time and your effort put in are both going to shape your grandchildren in the future - your role is key!

There are some ways that you can be a fantastic grandparent, but the key point here is that by being yourself, you are already fantastic. Your grandchildren will love spending time with you, as long as you are taking care of yourself. Chronic pain coming from Fibromyalgia can steal away special moments with your grandchild if you haven't found ways to manage it.  

Two years ago, I was overwhelmed by the symptoms of Fibromyalgia: constant, roving full-body pain, deep within the muscles and joints; utter exhaustion making any action seem herculean, and thick brain fog making my thoughts and language disjointed.  I've come a long way since that time, finding my way due to the help of a multi-disciplinary pain management program such as the one at Sound Pain Solutions.  Mine involved a pain psychologist, physical therapist, occupational therapist, and pain medical doctor, through working together, guided my journey through education on mind/body connection with how I can rewire my brain to help manage pain.




My wellness journey over these past two years has been fueled by my desire to be with my granddaughter and to be active in her life.  My current protocol using Low Dose Naltrexone, full-spectrum CBD, meditation, Yin Yoga,  swimming, taking walks, and being mindful to take breaks to rest both mind and body are allowing me to be fully engaged as a grandparent. 


Related Wellness Journey Posts:

The Benefits of Being a FULLY Engaged Grandparent


By being able to get my FM symptoms managed and able to be more predictable and present, I am now the grandparent that I want to be.  The benefits of the time my husband and I put into our granddaughter are innumerable. (As a granddaughter who was close to my own grandparents, I know first hand how that relationship guided my life, making me strong and self-confident.) Research has shown that the connection is reciprocal.


1. Reduces depressive symptoms in both

2. Grandparents (GPs) can give exposure to experiences and ideas that otherwise might be limited.

3.  GPs give a first-hand understanding of family history.

4.  A close connection helps grandchildren develop pro-social behavior.

5. GPs keep mentally sharp, active, and live longer when regularly interacting with their grandchildren.

6. Creates a deep unconditional love for both.



How to Be a FULLY Engaged Grandparent


Communicate: To be the best grandparent, you need to communicate with the parents - ie, your children! You need to ask them their rules, their routines, and their wishes for their children so that you can play them out, too. It’s polite to ask your children what they want for their children, even with your years of experience! You may have been a parent for most of your life, but it’s time for your children to make their decisions. If you want to make sure that life runs smoothly, you need to go with their wishes. 



  Dark haired woman, blond young girl, and bearded man all wearing sunglasses

My husband and I had the opportunity to really

 get to understand my son and daughter-in-law's

parenting goals and style when they lived

with us for two years.  We have great respect 

for how they are raising our granddaughter.

They, in turn, have come to fully trust

that what we do strengthens and enhances

growing our little girl. We stay in constant communication,

even while she's with us via text, photos, audio clips, and videos.
 
 
 

Be Silly: Grandparents are great for baking and gardening and cuddles, but there is nothing wrong with a little silliness, too! You can have all of the fun with none of the responsibility, and you get to hand the sticky, glittery, jelly-filled children back to their parents at the end of the night! As the silly, fun grandparent, you can always get the attention and love from your grandchildren, and the memories you’ll make will last you a lifetime.



Young girl  with hair in messy bun, wearing a headlamp & using an magnifying glass
My husband and I take our granddaughter's lead. 
Her imagination astounds us.  
Here we are dressed ready to catch "Greenie," 
the mischievous, naughty, super-villain that seems
 to plague our house and yard.  
I used to hate role-playing and make-believe, 
but now, I find acting like a kid with her 
to be invigorating. I watch in amazement 
as I see her thoughts percolating
 behind her ever animated, blue eyes. 


Love Your Limitations: When you’re grandparenting in pain, you only need to honor your limits and respect the pain you’re in. On bad pain days, choose activities that involve more reading together, movie nights and cuddles, and on good days you can get down on the floor and play with the train set. You don't have to choose to feel guilty for respecting your limitations. You can teach your grandchildren a little patience and teach them about you at the same time.


Grandmother cuddling granddaughter on a couch
With my husband and I both retired, we often tag team.  When I'm getting worn out, Bapa might take her for a walk to the garden to visit the white frog she's named Ghost who lives in the rain barrel there. Or he may take a snooze when she and I are doing a craft or playing a game.  But some times, especially when she spends the night, we have to let her know we need to take it easy.  We love watching kitty vs balloon videos on YouTube, read books, or watch a good movie on Disney+. (It's also a great excuse for extra snuggles!) 



Don’t Worry About The Mess: Those grandchildren of yours are going to step into your house and leave it a paint-covered, glitter-bombed showroom. You can love the mess or reject it, but the best thing to do is embrace it. The house will be loud once more, and that’s exciting!



Blond haired young girl wearing fairy costume
When our granddaughter leaves, we often joke
as we look around the house
that the miniature tornado has hit; toys and dress-up
outfits are strewn everywhere.
Our new dining room table has glitter embedded
into the wood grain. There's a bit of nail polish on the
chair, but you know, we don't care. It's just
evidence that we have had a wonderful time together.


We, grandparents, are lucky to have the chance to know our grandchildren. We have the opportunity to be fully engaged when we are with them (even more so than parents who have all the responsibilities that go along with parenthood). However, some of my friends don't have the luxury that my husband and I have because their grandchildren don't live nearby. Thank goodness for technology. It's worth buying a special set up so that you are able to talk to them with video regularly. During the past few months of quarantining due to COVID-19, people are getting creative ways to use video chatting: 10 Activities to Make Family Video Calls Fun for Kids.



I'd love to start a whole section of blog posts on FULLY Engaged Grandparenting. If you have any stories, activities, suggestions, tips to being a FULLY Engaged grandparent (especially if you are also dealing with a chronic illness that can be an obstacle), I'd love for you to share them with me either in the comments section or by sending me an email (see contact me).



Thank you for visiting my blog today. 

 

I am committing to posting once a week on Fridays.  

However, as you know, my new normal means that sometimes 

I have to listen to my body and am not able to follow through 

as planned. 

Thank you for your understanding.


Click link Subscribe to Pain FULLY Living Weekly Posts by Email




Sunday, June 28, 2020

Smile Power! Emotional and Physical Healing





This is going to sound very weird. I'm smiling while lying in bed. I'm smiling while typing these words.  I'm smiling when no one is around and there's nothing particularly amusing going on. I'm doing this after reading the book The Miracle of Mindfulness by Thich Nhat Hanh a  Buddhist Monk from Vietnam who played an important role in the 1960s and beyond. When he talks about meditation, he talks about posture, breath, focus, etc. but one thing he also emphasizes is putting on a half-smile as a part of your practice. "Now, begin to follow your breath and to relax all your muscles. Concentrate on keeping your spinal column straight and on following your breath. As for everything else, let it go. Let go of everything. If you want to relax the worry-tightened muscles in your face, let the half-smile come to your face. As the half-smile appears, all the facial muscles begin to relax. The longer the smile is maintained, the better.  It is the same smile you see on the face of the Buddha (1)."



This made me curious because it's brought up a few times in the book- how smiling when meditating, leads to smiling while being mindful, leads to smiling in every moment.  I think of my resting face.  I've not ever liked it.  I look mad.  I once had a student say that they had been told I looked like the woman who hosted the 2000-2017 TV game show called The Weakest Link.  She was worried I was going to be mean and say something like, "You're the weakest link!" Ugg! That has stuck with me.

However, smiling all day does NOT come naturally for me.  When our 6th-grade level moved from a middle school building to a K-6th elementary building, everyone smiled all the time, so I tried, too.  I remember joking with my partner teacher that after the first few days my cheeks actually hurt.

I decided to look into this whole smiling thing because according to Thich Naht Hanh, it really has a major impact on our inner perceptions and also on those with whom we interact. So, I decided both to research and start this smiling thing throughout the day as much as I could remember to do it (and not make others think I was losing touch with reality).

The Science of a Smile


In the article World Smile Day-How Smiling Affects Your Brain, the author explains, "Smiling activates tiny molecules in your brain that are designed to fend off stress. These molecules, called neuropeptides, facilitate communication between neurons in your brain. Also, when you smile, your brain releases dopamine, endorphins, and serotonin. These neurotransmitters are associated with lowering your anxiety and increasing feelings of happiness. In fact, serotonin is often the chemical that anti-depressant medications attempt to regulate. This natural, feel-good chemical cocktail that your brain serves up helps you feel happier and more relaxed, and it can even lower your heart rate and blood pressure (2)."

The Hidden Power of Smiling 
Ted Talk presented by Ron Goodman

In the article What's the Science Behind the Smile? the author, Ding Li states, "This is the start of the positive feedback loop of happiness. When our smiling muscles contract, they fire a signal back to the brain, stimulating our reward system, and further increasing our level of happy hormones, or endorphins. In short, when our brain feels happy, we smile; when we smile, our brain feels happier (8) ." 

In addition to feeling happier, a 2011 study by researchers at the Face Research Laboratory at the University of Aberdeen, Scotland found that when we smile,  we actually are better looking to others! "A study published in the journal Neuropsychologia reported that seeing an attractive, smiling face activates your orbitofrontal cortex, the region in your brain that processes sensory rewards. This suggests that when you view a person smiling, you actually feel rewarded (5)."

Another study of the effects of smiling on the brain conducted in Sweden showed that it was very difficult for subjects not to smile when shown photos of people smiling.  They were told to frown at every photo with a smiling face. Participants' first natural reaction was to smile.  They had to consciously choose to frown in order to follow the directions (4)

In the workplace, studies have shown that smiling increases the feel-good aura which in turn increases productivity as well as creativity (6). Researcher and economics professor, Andrew Oswald's found,  "Happier workers, our research found, were 12% more productive. Unhappier workers were 10% less productive (3)." 

Smiling can even help keep our bodies healthier.  Some research says it can add on years to our lives because our cells change their functioning due to our thoughts and emotions.  "When we smile, we reduce the rigidness of our cells, and this physical relaxation can help combat the risk of stress-induced cell mutations that can lead to the development or persistence of various cancers (7)." It is thought that less cellular stress allows for better balance in the body which then leads to health and overall wellness.



My Smiling Challenge

There are times a grin comes to my face naturally. Do you see the crow's feet at the sides of my eyes?  This is a true smile of happiness according to scientists, called the Duchenne Smile (6). When I'm around this kid, my face lights up to her bright smile.  I have noticed a sense of energy and happiness comes nearly every time no matter where I am physically and emotionally before she comes over.



While writing this post this morning, I received a phone call from my cousin. My uncle Bill and surrogate dad passed away today.  He was someone who never spared a smile for me. I wish right now that I had somehow captured that smile in a photo from the last time he gave it to me when we visited him and my aunt in Arizona. His smiles were always quickly followed by a hand holding or hug.  In the last year when he couldn't speak his thoughts due to Aphasia and dementia, his smile said so much, "I'm so glad to see you! I love you! You make me happy!" That smile is etched in my memory as are the countless before, but I don't want them to fade. 

My Uncle Bill playing a game (a favorite past-time),
giving his warm and mischievous half-smile.


And so, I'm going to follow Thich Nhat Hanh suggests in his book by smiling more.  I'll let you know how my experiment goes on World Smile Day, October 2, 2020. If nothing else, it will strengthen my zygomatic major muscle, which resides in the cheek and tugs the lips upward and my orbicularis oculi muscles, which encircles the eye socket and squeezes the outside corners into the shape of a crow’s foot (6). Or I'll make everyone wonder what I'm up to!  Both are worth the effort😁


Smile Resources:



In my article The Danger of Distraction: Turning Toward Pain to Eliminate Suffering speaks to my feelings of trying to ignore difficult emotions and physical sensations.  I've seen way too much of that growing up and how it has and is damaging those I love. 


Do you smile often?  Have you ever faked a smile?  I challenge you to do the Half-smile Exercises for the next three months.  Let's see if we can bring a bit of goodness to the world.

Thank you for visiting my blog today. 

 

I am committing to posting once a week on Fridays.  

However, as you know, my new normal means that sometimes 

I have to listen to my body and am not able to follow through 

as planned. 

Thank you for your understanding.


Click link Subscribe to Pain FULLY Living Weekly Posts by Email




Friday, June 26, 2020

Fibro Blogger Directory: Fibro Bloggers and their Stories - Living FULLY Despite Pain


I didn't get a post written for this week.  I've been in a bit of a funk.  However, I did share a post with a wonderful online group I belong to-Fibro Bloggers Directory.  Lee Good, the curator of this group, is sharing "get to know you posts" from the various wellness bloggers living with Fibromyalgia.  In addition, each week, she posts Fibro Fridays where these wonderful writers share their recent blog posts.  

I've learned a lot about living well with Fibromyalgia as well as about the way of blogging from this group.  For me, it has been a big support and source of encouragement in my writing and in my daily struggles with FM because they live it themselves.  If you or someone you love has Fibromyalgia, I would highly recommend checking out the weekly Fibro Friday posts.  (I have several of their blog links on my Resources page.)

Click on the below link to read the article I wrote for FBD.  I'll be back next week with a review of a wonderful, life-impacting book: The Book of Joy.


Fibro Blogger Directory: Fibro Bloggers and their Stories - Katie from Pain...: Living FULLY Despite Pain - Katie Clark's Story Me portaging a canoe (only a few feet),  during a week-long canoe trip at  ...


Thank you for visiting my blog today. 

 

I am committing to posting once a week on Fridays.  

However, as you know, my new normal means that sometimes 

I have to listen to my body and am not able to follow through 

as planned. 

Thank you for your understanding.


Click link Subscribe to Pain FULLY Living Weekly Posts by Email